10/15/2011
Thank you to everyone that has messaged me asking about Ethan. I figured it would be easier to do a post rather than respond to each individual message and hope you all understand and don't think I'm ignoring you.
Ethan is doing extremely well considering he had a major surgery on Tuesday. He has developed a little rash on his chest but the nurses assured us they are monitoring it. When we went to visit yesterday he was moving his fingers and toes, trying to open his eyes and starting to breath on his own through the machine. The nurses said that they had noticed that and spoke to the surgeon. It seems that he had built up a tolerance to the paralytic and they either needed to increase the dosage or with the surgeons approval remove it all together. The surgeon decided to take him off of it since he seems to be doing so well. (YAY!) He will still be sedated but should be weening him off of that either today or tomorrow.
The surgeon said that he had planned on doing the dye study on Tuesday to make sure that the surgery took well and their is no leakage in Ethan's esophagus. This study might be moved up to Monday depending on how well Ethan is doing. After the dye study we will begin to discuss how to begin Ethan's feedings. I know initially it won't be by bottle but I'm interested to see if they will go through his nose or mouth. It all depends on when they feel that he is ready for extubation. They don't want to take him off too early as the surgeon doesn't want to have to put him back on and mess up his handy work if they miss the trachea.
That's all I really have for now. Again thank you all for your concern and prayers. I can't tell you how much it means to my family and I.
Ethan is doing extremely well considering he had a major surgery on Tuesday. He has developed a little rash on his chest but the nurses assured us they are monitoring it. When we went to visit yesterday he was moving his fingers and toes, trying to open his eyes and starting to breath on his own through the machine. The nurses said that they had noticed that and spoke to the surgeon. It seems that he had built up a tolerance to the paralytic and they either needed to increase the dosage or with the surgeons approval remove it all together. The surgeon decided to take him off of it since he seems to be doing so well. (YAY!) He will still be sedated but should be weening him off of that either today or tomorrow.
The surgeon said that he had planned on doing the dye study on Tuesday to make sure that the surgery took well and their is no leakage in Ethan's esophagus. This study might be moved up to Monday depending on how well Ethan is doing. After the dye study we will begin to discuss how to begin Ethan's feedings. I know initially it won't be by bottle but I'm interested to see if they will go through his nose or mouth. It all depends on when they feel that he is ready for extubation. They don't want to take him off too early as the surgeon doesn't want to have to put him back on and mess up his handy work if they miss the trachea.
That's all I really have for now. Again thank you all for your concern and prayers. I can't tell you how much it means to my family and I.
10/17/2011
Ethan was extubated today!! It looks like his heart surgery will be sometime next week.
Ethan started off the day doing extremely well. He had his dye study for the esophagus surgery at 11:00 and there were no leaks! Dr said we could begin feeding him by bottle around 4 or 5. Unfortunately that never happened because his blood pressure and sat's started to decrease rapidly, he began to have difficulty breathing and he turned pale. Long story short he had to be reintubated. Cardiologist is on the way now to do an echocardiogram. They have put him back on the prostaglandin to try to re-open the ductus. Looks like he might need his heart surgery sooner than we thought. Prayers needed!!
Well it appears that Ethan's heart is functioning well and that he has somehow gotten an infection the doctors don't know how or what kind of infection so they have put him on three different antibiotics. He is stable now but the next twelve hours are critical. Once he has been stable for a while they want to transfer him to rady's childrens hospital. Hopefully tomorrow or the next day.
10/20/2011
Ethan was transported to Rady's Childrens hospital. They are in the process of checking him in now. His stomach is still swollen and ascended and heart function has decreased. We are happy to be at children's and hope that Ethan will improve here. The past couple days have been really tough and we are ready for the tides to change.
Ethan was placed in another medicated coma when we got to children's on Thursday. They started weening him off the paralytic yesterday and is stating to wake up again today. His organ function is returning, but he still needs to be on the ventilator. Not sure when he will have his heart surgery he needs to recover more from his infection.
10/31/2011
Ethan had to be reintubated this morning because his right lung collapsed. Please keep him in your prayers.
7:30 pm update:Ethan's lung was starting to expand again by the time I left the hospital today. His heart surgery will be tomorrow around noon and should last 5-6 hours. I will update everyone as we know more. Thanks again for all your prayers.
11/1/2011
Our surgeon was just called to an emergency operation which will push back Ethan's surgery. We will keep everyone posted on when he is able to go in as soon as we know. In the meantime I'll just continue to stare at my precious boy.
Ethan is out of surgery! Everything went well and he is back in the NICU. They are going to keep him pretty well sedated tonight and slowly wake him up again tomorrow. We are with him now and he looks good just a little pale. Thank you so much for your prayers, support and words of encouragement. It means so much to Mike and I. — with Michael Juarez.
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