11/5/2011
Ethan got his snorkel gear off today...aka CPAP. He is very happy! Four days after open heart surgery. He is up to 2 ounces of milk through his NG tube. He will have a swallow test Monday and start bottle feeding! Praise God for his speedy recovery!
11/8/2011
I can't believe that a week ago today Ethan had his open heart surgery. He is officially off all IV's, and any type of breathing assistance. He looks fantastic and is quite the flirt with all the nurses. Next step is to work on his bottle feeds and he can come home. The occupational therapist will meet with him tomorrow for his first bottle feed and she will develop a plan for him. I'm seeing the light at the end of the tunnel. Thanks again for the prayers, support and messages- they mean so much to Mike and I.
11/13/2011
Looks like we MAY be taking home baby Ethan tomorrow! Yay! Ok, so what do I need for a baby at home??? I'm making a walmart run tonight for diapers, wipes and Tylenol. What am I forgetting that I will need?? Help!
11/14/2011
Looks like baby E won't be coming home till tomorrow:( at least I'll get in another full night if sleep and maybe another run to the store right?? #tryingtobepositiveandnotsad
11/15/2011
Looks like Ethan will not be coming home tonight. ;( he didn't take his full feeding this morning (36 out of 60 mls) and didn't gain any weight from yesterday. They want to monitor him to make sure it's not a trend. :( Its been a long five weeks and I'm ready to take my baby home....
11/17/2011
On our way home!!
12/07/2011
Ethan update- We saw the cardiologist again yesterday. Ethan is doing so well that we won't need to go back for a month!! We're still not sure what the next operation will be as his heart is borderline for hlhs. We are praying that the left ventricle is large enough to be useful but the doctors are divided. We are hopeful that the next surgery will just be to close his VSD and fix the coarctation of the aorta. Please pray for this for us. The cardiologists in Los Angeles are reviewing his case now and we hope to hear from them sometime in the coming week about what operation he will need and the timing of it all. We will keep everyone posted as we learn more.
Got home from taking Ethan from urgent care just in time to say happy new year to the rest of the kids and guess where I'll be going tomorrow at 9:00am??? That's right- a follow up appointment for Ethan at urgent care. Happy New Year to all!
Tomorrow is my first day back to work since Ethan's arrival. Wish me luck on getting through the day without having a breakdown. :)
2/14/2012
Headed to the hospital with little Ethan. He got sick over the weekend and it's progressively gotten worse. Took him to urgent care yesterday and they did X-rays and put him on antibiotics. Mike called his cardiologist to have him also review the X-rays. He called this morning and wants Ethan to have antibiotics through an iv for a day or two. Happy heart day to us.
2/15/2012
Hospital stay for one night- $2,000 (out of pocket, WITH insurance)
Having my baby home again- $priceless$
Thanks again for the kind words and prayers!!
3/5/2012
Took Ethan to the cardiologist today and got good news. Don't want to say to much now as we need to get the results from his cardiac catheterization, but things are looking up!
3/28/2012
Ethan had a terrible night last night. He was up coughing and throwing up pretty much all night. When we got up this morning he threw up and looked blue. Mike took him to the doctor this morning and the doctor gave him a nebulizer and put him on oxygen. Oxygen saturation levels are lower than they should be. The emergency transport team from Rady's came to our doctors office and we are in route to San Diego for an overnight stay. Ethan's procedure in L.A. for tomorrow has been canceled (again). Please keep our little one in your prayers.
Update- 5:27 pm
Baby E is finally asleep and his coloring is looking better. Thank you all for your kind words and prayers.
My miracle baby Ethan Matthew Poochie Cheeks Juarez is a half year old today! How time flies when your having fun (or visiting doctors and hospitals in our case!) Love my little man!
5/2/2012
Driving up to L.A. for Poochie's cardiac catheterization which is scheduled for tomorrow at 9:00am. He is finally well enough to go through the procedure! They say timing is everything and I think baby E knew that he wanted his procedure to end up on the international day of prayer. It suits me just fine, please keep mr Ethan Matthew Poochie Cheeks Juarez in your prayers tomorrow. (since you'll be praying anyhow...)
5/4/2012
Sorry no update for a while. I'm still processing everything from yesterday. Everything went okay with the cath a little excess bleeding in recovery but a smooth procedure overall. Results were not quite what we wanted but I have faith that the cardiology team in L.A. will come up with a good plan for Ethan. The team will meet on the 18th to discuss Ethan's case. Ethan is feeling better and his appetite is finally coming back. Thank you all for the prayers, kind words and support!
5/25/2012
Ethan's finally getting use to his nebulizer!
Ethan has been sweating more and more lately, especially when feeding. Weird thing is its only on the left side of his head. I realize that it is time for his next surgery, did any other heart mama's out there notice this with your babies??
7/4/2012
Happy 4th of July all! Daddy let me celebrate my independence by letting me go in a swimming pool for the first time!! I loved it!! (from Ethan Matthew aka Pooch)
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